A Life of Positivity and Resilience: Matt Eagles on 50 Years with Parkinson’s

This weekend, I came across a story that I think is a must-read for anyone but especially newly diagnosed with Parkinson’s. It’s the story of Matt Eagles, a remarkable advocate I first met a few years ago in Barcelona at the Parkinson’s Congress. Every time I bumped into him, he greeted me with a smile radiating warmth and positivity. Meeting him was always uplifting, and his journey is truly inspiring. Matt was diagnosed with Parkinson’s as a child, and this year marks an astonishing 50 years since that diagnosis. Today, at 56, he is known across the Parkinson’s community for his unwavering positivity and advocacy. He founded the Parkylife project, a platform dedicated to sharing uplifting stories, tips, and hacks from the global Parkinson’s community. He also chairs the Patient and Public Involvement group for Restart PD, a study using augmented reality to make exercise fun and therapeutic for people with Parkinson’s, and serves as a trustee for SPOTLIGHT YOPD, supporting those diagnosed under 50. Matt’s story is one of resilience, courage, and determination to live life to the fullest despite Parkinson’s. Reflecting on five decades with the condition, he describes the mix of heartache, vulnerability, and triumph that has shaped his life. Key moments range from passing his driving test in 1986, a milestone of independence and confidence, to the difficult decision to give up driving in 2001 when his symptoms made it unsafe. A turning point came with Deep Brain Stimulation surgery nearly two decades ago, which restored both mobility and quality of life. Among the happiest moments, Matt counts his marriage to Viv in 2014 and discovering his vocation as Head of Patient Voice at Havas Lynx, a role that allows him to shape healthcare campaigns and amplify the voices of patients and carers. Living with Parkinson’s has taught Matt the importance of a positive mindset. He explains that positivity doesn’t just help manage symptoms—it shapes the way he interacts with the world. Smiling, engaging with others, and focusing on what he can control all contribute to navigating the daily challenges of the condition. For Matt, the Parkinson’s community itself is a source of inspiration, friendship, and support. Attending global events like the World Parkinson’s Congress has provided moments of joy and connection that he treasures. Over the years, he has witnessed the evolution of care, from limited physiotherapy to a rich array of activities such as dance, yoga, sports, and social engagement. Technology and social media have also helped increase awareness, although misinformation remains a challenge, particularly around “miracle cures” and unverified treatments. Matt also reflects on public perceptions of Parkinson’s, noting that the condition is still often wrongly seen as affecting only older white men. He believes education and updated representation are crucial to changing these misconceptions, from media images to medical teaching. Above all, Matt’s story is a testament to living fully with Parkinson’s. His energy, courage, and relentless desire to embrace life are a reminder that even with a chronic condition, joy, purpose, and connection are possible. His journey offers hope and practical inspiration for anyone newly diagnosed, showing that while Parkinson’s brings challenges, it can also bring unexpected opportunities and profound personal growth. I highly recommend reading it, published by Parkinson’s Europe.