World Sleep Day Sees Launch of Parkinson’s Disease SLEEP Survey

PD Avengers launched SLEEP survey “Surveying Late Evening Effects of Parkinson’s” today as we recognize World Sleep Day (March 15). This initiative delves into the often- overlooked realities of how Parkinson’s disease (PD) profoundly impacts sleep and aims to shed light on this lesser- understood symptoms and challenges of the condition. Parkinson’s disease is the fastest growing brain disorder in the world and impacts nearly 10 million people. PD is often characterized by tremor, muscle rigidity, slowness of movement and difficulty with balance. Parkinson's disease is not just a motor disorder that affects movement. In fact, there are over 40 potential symptoms that can impact a person's quality of life, including issues with sleep, pain, gut health, and constipation. While tremors and other motor symptoms are well-known, many other symptoms, such as sleep and depression can be invisible to others, making those with the disease feel even more isolated. What was once a tranquil period of rest transforms into a battleground where the complexities of the condition manifest with remarkable intensity, disrupting not just sleep but also overall well-being across motor symptoms and non-motor symptoms alike. Starting March 15th through May 15th, the SLEEP survey will be made available online in English, French and Spanish. People with Parkinson’s disease and their care partners are encouraged to Insomnia, restless legs syndrome, and REM sleep behavior disorder are just a few issues people living with Parkinson's contend with each night. Share input and experiences around sleep and symptoms that may be more pronounced during the night. The timeline of the survey strategically encompasses the entirety of April, designated as Parkinson’s Awareness Month. Of particular significance is April 11th, World Parkinson’s Day, when attention will be directed towards spotlighting symptoms and the impact of PD for those living with it and their care partners, fostering greater understanding and support for all those affected. This initiative is a collaboration between PD Avengers and AbbVie and is designed to spotlight the symptoms and their profound impact on individuals living with Parkinson’s disease, their care partners and their communities.